Patient Focus

Alexion shares key goals with patient organizations worldwide, including increasing the understanding of rare diseases, improving patient care, and enhancing access to innovative therapies. Our approach to serving patients is driven by a passion for understanding and meeting the unique needs of patients and families suffering from rare diseases.

We offer programs that provide education and treatment support for patients, and we provide support for advocacy groups and charitable foundations to address the diverse needs of patients globally.

Patient Groups

Alexion provides support to patients groups throughout Europe, in accordance with local laws. For a list of our support to patient advocacy groups please click below, and learn more about the patient organizations we support globally.

Learn More

Access

Alexion is focused on developing and delivering innovative treatments for patients with severe and life-threatening rare diseases for which there are few, if any, effective treatment options. More importantly, we believe that our treatments must reach the patients who are most in need of solutions.

Alexion works with private healthcare organizations, policy makers and governments around the world so that patients with rare diseases have access to our therapies. Governments and payors in dozens of countries have recognized the value that innovative medicines can provide to patients with rare diseases. Ongoing partnerships between governments and companies like Alexion can support continuing medical innovation and facilitate access to drug therapies once they are available.

View our Global Access to Medicines Policy

Resources

When a patient is diagnosed with a rare disease, having a support system can be as important as having the right physician and treatment plan. Resources for patients with rare diseases include:

  • European Organization for Rare Diseases (EURORDIS) is dedicated to helping people with rare diseases and assisting the organizations that serve them.
  • Global Genes is a non-profit organization that promotes the needs of the rare and genetic disease community under a unifying symbol of hope—the Blue Denim Genes Ribbon™.
  • Orphanet is a database of information on rare diseases and orphan drugs for the public. Its aim is to contribute to the improvement of the diagnosis, care and treatment of patients with rare diseases.
  • RareConnect.org is a social networking site created by National Organization for Rare Diseases (NORD) and EURORDIS to help patients and families connect with and support each other and share vital experiences of living with a rare disease.

The resources below offer disease-specific information provided by Alexion: